Welcome! In these videos, meet a group of individuals who either live with Alzheimer's disease, or care for someone who does. They share personal stories and insights from their journeys following an Alzheimer's disease diagnosis.
Strategies for Dealing with Alzheimer's Disease
Greg and Mary Catherine share some specific strategies that help them: diet, sleep, exercise, journaling, routine, and seeking out a support system.
Facing Fears: The Importance of Early Diagnosis and Communication
Greg and Mary Catherine share their advice on seeking early diagnosis in order to explain why communication is so important and how it enables patients and their families to get the support they need.
Webisode One: Spotting the Signs of Dementia
Recognizing that a loved one has symptoms of Alzheimer's disease and speaking to them about it can be difficult, but Samantha thinks it's the best way forward.
Symptoms of Agitation
Meryl describes how the symptom of agitation manifested as her husband, Harvey’s, Alzheimer's disease progressed. His agitation became severe enough where it would sometimes become physical. Meryl shares her experience, and emphasizes the need for research in identifying early signs of dementia.
Becoming Insular as a Caregiver
At the time of Harvey’s Alzheimer's diagnosis, it was considered a death sentence. Meryl describes how she kept Harvey’s more aggressive behaviors a secret, isolating herself, and how she was nervous when family or friends would reach out to help.
Experiencing Years of Misdiagnosis
Meryl’s husband, Harvey, was a physician/researcher in the prime of his career when he first started exhibiting signs of Alzheimer's. She shares her struggles getting him diagnosed at a time when there wasn’t a lot of awareness of the disease. He was repeatedly misdiagnosed for 4.5 years until he received a formal Alzheimer's diagnosis after a two month stay in a hospital.
Advocating for the Future
Meryl speaks about the importance of advocacy in her life and the urgency for information and access to clinical trials.
Alzheimer's Effects on Caregivers
Meryl describes how her world revolved around caring for her husband and that she had to give up her career in her prime. She speaks about the intensity of care over time and the financial burden, and how she found ways to stabilize the situation. She also speaks about how she found her voice through advocacy work.
Early Signs of Alzheimer's Disease
Meryl describes the early signs of Alzheimer's she experienced with her doctor husband and how he was good at hiding them. She reflects on how she notices those signs among other people.
Webisode Two: Seeing the Doctor
Samantha found she needed to take a leading role in the conversation with the family doctor to ensure her mom's memory problems are communicated.