Welcome! In these videos and articles, meet a group of individuals who either live with polycystic kidney disease or care for someone who does. They share personal stories and insights from their journeys following a PKD diagnosis.
What Family Support Has Done for Me
John discusses the importance of family support after being diagnosed with PKD.
Caring for Someone with PKD: Our Family’s Healthy Lifestyle
How a PKD family can be supportive by example.
PKD: The Challenge of Uncertainty
For Cara, the biggest challenge of having PKD in the family is the uncertainty that comes with it.
Being a Kidney Donor
Cara’s husband John needed a kidney transplant – she shares their experience together.
My Husband’s PKD
Cara shares a snapshot of her husband’s PKD journey.
Living with PKD: Involved, Positive, and Active
John offers advice to his younger self – stay positive and make healthy choices
Telling My Daughters about PKD
John shares how he discusses PKD with his teenage daughters
Life after Transplant: Taking Care of My New Kidney
John shares how having a new kidney motivates him to stay healthy.
Our Experience with a Paired-Exchange Kidney Transplant Program
Although John’s wife was not a compatible donor for him, this innovative program facilitated a timely and successful match.
My PKD Journey: From First Symptoms to Transplant
John shares his symptoms and his strategies for management as his PKD has progressed.