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Valen shares her experiences growing up with PKD and wishing she had examples of thriving adult PKD patients she could look up to. As an adult, she has made it her mission to create a kidney community where people can share their journeys.

Cara’s husband John needed a kidney transplant – she shares their experience together.

Janet reflects on what may have been good to hear when she was younger.

The challenges of PKD can be hard to balance for everyone involved. Sean shares the day-to-day thoughts of being a PKD parent and spouse.

Jayce has found that in her experience, giving her brother some space and autonomy was the right choice, but may not be for everyone.

John’s mother kept her PKD diagnosis private, even to her children, until her health was declining – today, John’s family talks openly about PKD.

Addye discusses how being part of an online community is a very real and important experience for her.

Jennifer describes starting an organization that encourages people to share their stories, striving to spread education and fight the stigmas of mental illness.

How a PKD family can be supportive by example.

With its stigma and symptoms, schizophrenia can cause relationship difficulties for Mike.