Community Stories

Valen and her family explain how PKD has manifested differently in Pam’s family members over 5 generations.

Steve recalls the time he spent receiving dialysis while waiting to be placed on the transplant list and how his wife found a way to donate a life-saving kidney.

When Heather found out about Steve’s CKD early on in their relationship, she decided that she would do everything she could to help him on his CKD journey. 6 years later, Heather donated a kidney to save Steve’s life.

Steve was weeks away from achieving his dream of playing college basketball. A simple blood pressure test changed his plans and started him on his CKD journey.

If Steve could go back in time, one thing he would change is getting into the right mindset earlier in his CKD journey.

Steve talks about how his sense of self has changed over the course of his CKD journey.

John discusses the importance of family support after being diagnosed with PKD.

How a PKD family can be supportive by example.

For Cara, the biggest challenge of having PKD in the family is the uncertainty that comes with it.

Cara’s husband John needed a kidney transplant – she shares their experience together.