Community Stories

Welcome! In these videos and articles, meet a group of individuals who either live with polycystic kidney disease or care for someone who does. They share personal stories and insights from their journeys following a PKD diagnosis.

Length: 2:25

My Husband’s PKD

Cara shares a snapshot of her husband’s PKD journey.

Length: 1:30

Living with PKD: Involved, Positive, and Active

John offers advice to his younger self – stay positive and make healthy choices

Length: 2:01

Telling My Daughters about PKD

John shares how he discusses PKD with his teenage daughters

Length: 2:04

Life after Transplant: Taking Care of My New Kidney

John shares how having a new kidney motivates him to stay healthy.

Length: 1:31

Our Experience with a Paired-Exchange Kidney Transplant Program

Although John’s wife was not a compatible donor for him, this innovative program facilitated a timely and successful match.

Length: 2:43

My PKD Journey: From First Symptoms to Transplant

John shares his symptoms and his strategies for management as his PKD has progressed.

Length: 2:50

Being Open about PKD in the Family

John’s mother kept her PKD diagnosis private, even to her children, until her health was declining – today, John’s family talks openly about PKD.

Length: 1:52

Finding out I had PKD

John reflects on what it was like to learn that he had inherited PKD.

Length: 1:12

PKD Family Planning: A Tough Conversation

Sean and Kate share an insight into their decision to have another child after their first was diagnosed with PKD.

Length: 1:43

Community & Understanding PKD

Following Kate and Owen’s PKD diagnosis, the Williams family found the support they needed in the PKD foundation.