Community Stories

Sean is a caregiver to his wife and son with PKD. To support them, he focuses on two things: the value of good information and the PKD community.

Contributing to public awareness about PKD and the PKD community provides the Williams family with a sense of control over their own PKD story.

The challenges of PKD can be hard to balance for everyone involved. Sean shares the day-to-day thoughts of being a PKD parent and spouse.

Kate and her son, Owen, talk about his PKD.

The Williams share what they’re doing to manage Kate and Owen’s PKD and highlight the specific challenges of their son’s condition.

Kate shares how PKD fits into her life as a mother, teacher, and a dancer.

Until he was born, Owen’s PKD prognosis was unclear, so the Williams were cautious about what and when to share information with their family and friends.

Being unfamiliar with PKD, Kate and Sean didn’t know what to expect. They share the thoughts and emotions they experienced immediately after Kate and their unborn baby were diagnosed with PKD.

Late in Kate’s pregnancy, an ultrasound revealed that her baby had polycystic kidney disease, and shortly thereafter she was diagnosed too. Kate and her husband, Sean, share their story.

David’s mother had PKD, but his brother has not been diagnosed with it