Community Stories

Welcome! In these videos and articles, meet a group of individuals who either live with polycystic kidney disease or care for someone who does. They share personal stories and insights from their journeys following a PKD diagnosis.

Length: 2:51

Financial, Physical, and Emotional Challenges

Leslie shares some of the logistical and emotional challenges that come with ADPKD

Length: 1:35

My Husband’s ADPKD Progression

Leslie shares how ADPKD has impacted David’s lifestyle

Length: 3:49

My Role as a Caregiver: Research

Leslie cares for David by researching to make sure they’re doing all they can to manage his ADPKD.

Length: 2:42

I am My Husband’s Living Donor

Leslie is donating her kidney to her husband – she shares the many questions she had throughout the process.

Length: 0:50

Coping with My Nephrectomy

David took some time away for himself before his nephrectomy.

Length: 1:36

Living with ADPKD

David describes the specific challenges of living with ADPKD

Length: 0:48

Managing the Stress of ADPKD

David manages the stresses of living with ADPKD with patience and positivity.

Length: 1:00

My Wife is My Living Donor and Caregiver

David’s wife has offered him emotional support, and a kidney.

Length: 1:44

Advice to My Younger Self: Pay Attention to ADPKD

Reflecting on the years since his ADPKD diagnosis, David considers advice he might give himself at a younger age.

Length: 2:20

My ADPKD Story: From Diagnosis to Transplant

David was diagnosed with ADPKD nearly 20 years ago and has largely ignored the progression of his disease over time. Here he discusses his nephrectomy (kidney removal surgery), being on dialysis, and preparing for a transplant.