When you are caring for someone with autosomal dominant polycystic kidney disease (ADPKD), it may be difficult to focus on your needs as well as those of your loved one.

Because ADPKD is genetic, meaning it runs in families, it can affect the family as a whole. This is one reason you may find it essential to talk with family about your diagnosis.

ADPKD, or autosomal dominant polycystic kidney disease, accounts for most cases of polycystic kidney disease (9 out of 10). Some people with ADPKD are at risk for accelerated disease progression.

Living with a chronic kidney disease like ADPKD means you face decisions throughout your lifetime as your illness progresses. Your healthcare providers can help you make these decisions.

Talking about ADPKD is a personal decision and may be difficult for your loved one struggling with ADPKD. Not knowing what to say can add to your stress and add difficulty in caring for him/her.

There are many organizations and resources in the PKD community available to help you and your loved one with ADPKD. To learn more and connect with others going through similar experiences, visit the sites below.